Carol ManningUniversity of Virginia, USA
Title: Implications of a Dementia Caregiver Intervention Model
In the United States, people with dementia are cared for by 16,000,000 unpaid caregivers (Alz. Association, 2019). Dementia caregivers have increased morbidity and poorer health than non-caregivers. Negative biopsychosocial impacts related to caregiving undermine the capacity to provide care, and lead to increased institutional placement, increasing burden on public systems (de Vugt, Verhey, 2013). Caregivers (CGs) of persons with dementia (PWDs) have relatively high levels of caregiver burden, depression, and anxiety. This talk will discuss the efficacy of a novel care model in which participants were assigned care coordinators who provided education, support, guidance and access to existing resources. At the entry into the dementia care coordination program, CGs were surveyed about personal characteristics, characteristics of the PWD they care for, mental health symptoms, and their perceptions about caregiving. Linear regressions were conducted to assess associations between protective factors (i.e., preparedness for caregiving, dementia knowledge) and CGs’ levels of depression, anxiety, and caregiver burden, controlling for CG age, CG education, and PWD level of functional independence in activities of daily living (ADLs). Results of this cross-sectional study indicate that CGs’ preparedness for caregiving is associated with CG burden and that younger GGs had higher levels of depression and anxiety. These findings suggest that CG age may impact CG mental health and provide opportunities for intervention including targeting mood in younger CGs and increasing CG preparedness to potentially decrease CG burden. Additionally, emotional preparation for providing care to PWDs may be more important for reducing CGs’ burden than teaching specific knowledge about what to expect in dementia, and CGs of PWDs with lower functional abilities may benefit from targeted supports to reduce burden.
Dr. Carol Manning earned her PhD from the University of Texas. She is Director of the Memory Disorders Clinic, Director of the Neurobehavioral Assessment Laboratory, Harrison Distinguished Teaching Professor of Neurology and Vice Chair for Faculty Development in the Department of Neurology at the University of Virginia. In addition to being Director of the Memory Disorders Clinic, Dr. Manning is Director of Neuroclinical Trials, site PI of Lewy Body Dementia Research Center for Excellence, and was appointed by the Governor of Virginia to the Commonwealth of Virginia Alzheimer’s Disease and Related Disorders Commission. She received the Partnership Excellence Award from the Huntington’s Society of America, the University Of Virginia School Of Medicine Award for Clinical Excellence, and is a member in the Academy of Distinguished Educators. She received the 2019 Sharon L. Hostler Women in Medicine Leadership Award. She has current or previous funding from the Administration for Community Living, the National Institutes of Health, the Department of Defense, the Alzheimer’s Association, the Virginia Department of Aging and the Alzheimer’s and Related Disorders Fund. Her publications and research involve the effects of neurodegenerative disease on caregiving, memory, apathy and the impact of vascular risk factors on dementia in minority populations.